Today’s Prompt:
- Create a “care page” – a list of your
best resources that someone who is newly diagnosed could go to when
starting to advocate for themselves or a loved one. Remember to include
sites that lead to successful self-advocacy!
The first and most beneficial resource for me has been
CCFA, which is the Crohn's and Colitis Foundation of America. It is a great organization that not only has a website with a lot of information, it has webcasts and patient forums. In addition, CCFA has patient support groups, which meet once a month, in most cities. About twice a year, CCFA organizes a patient education symposium, wherein doctors hold sessions to cover a multitude of isses, from medications and side effects, to symptoms, to the latest treatment, to nutrition. A patient education symposium is a great way to not only get geat, up-to-date information, but also to network and meet fellow patients.
Through CCFA, I have met fellow Crohnies who have become good friends, and have served as a good support system.
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