Me: Hi, My name is Kat, and I am an illness hoarder. (You: Hi Kat!)
Because I am indecisive and an illness hoarder, I carry not one, but four diagnoses: Crohn's Disease, Fibromyalgia, Depression, and PTSD. They are all rather lovely, and I coudn't decide, so I chose them all! Haha.
This year marks my 2nd participation with HAWMC, and my 2nd year as a health activist. I'm not a formal activist in the sense that I'm bringing about anything other than awareness to my illnesses, via my blog. My writing makes me a health activist.
I write about my health because it
helps raise awareness about: Crohn’s Disease, Fibromyalgia, Depression, and PTSD, from a personal
perspective, that goes beyond the “textbook case” of the diseases, by
humanizing them. These chronic, debilitating, life-threatening illnesses don't just affect the body, but the
whole person, and even beyond the person, the person’s surroundings,
loved ones, friends. So far writing has been a cathartic experience for
me. The ease with which I have written these pieces has surprised me,
as it tells me that I have kept my feelings bottled up for far too
long. The fact that these pieces flow out of me so easily reinforces my
decision to write about my health. I have something to say that needs
to be told. I have been silent for far too long, which has affected my
mental health. Repressing my feelings is one of the symptoms of my
depression. It is my hope that I can begin the healing process by
writing about my health, to help me get closure on what I’ve been
through in the past, as well as to help me grow.
I write about my health because it
helps me connect with others.
I’ve tried to be as open as possible, in the hopes that others can
relate to what I’m going through. To help them see that they are not
alone, to help ME see that I’M not alone. To not only raise awareness,
but HOPE. The responses and support I’ve received thus far have been
great. I’ve heard from fellow Crohnies who find something in what I’ve
written to which they can relate, which then opens up a discussion. And
by talking about what we are going through, we begin the healing
process. We see that we are not alone, we help each other cope, we feel
hope, we feel encouraged, and the healing process is set in motion.
Some of my old posts
that I feel capture my identity as a Health Activist and
about my condition,
include the following:
- #HAWMC Day 5: Ekphrasis Post - in which I reflect on having looked death in the face because of complications following a surgery to treat my Crohn's disease.
- HAWMCDay20: There Is No Miracle Cure- in which I reflect upon there being no miracle cure for my illnesses, specifically Crohn's Disease, and all the feelings that arise as a result of living with an incurable disease.
” I write because there is a voice within me that will not be still.” - Sylvia Plath
I too have a voice within me
that demands to be heard. We all have a voice, we all have our stories,
and we deserve to be heard. I choose to use my experience as a tool to
transform myself and grow. And each day I feel myself growing stronger
and transforming into a chronically awesome individual who amongst
other things, happens to have a chronic illness. I am discovering my
gifts and talents. I have a chronic illness, but it does not have me.
And that is a very powerful feeling.